seriously ill child who arrived in UK as Syrian refugee to be transferred to palliative care after a High Court judge ruled it would in her best interests.
six-year-old, who name cannot be given, he has a rare neurological disease that doctors consider incurable.
The Birmingham Women’s and Children’s NHS Trust has asked the High Court to decide that moves we in girl best interests.
Experts say that the child should do not give longterm ventilation and instead switch to palliative care.
girl parents, who arrived in United Kingdom in 2016 under the Syrian Vulnerable Persons Resettlement Scheme, disagreed and demanded ventilation in them home.
They say that their daughter’s condition improves when she in her home environment.
In giving him a decision, Judge Hayden described the child’s condition as “relentlessly neurodegenerative.”
He said, “I haven’t seen any evidence that [the child] experiences any benefit from life.
He described her family as “incredibly brave and resilient”, and in giving up their desires to have a long-term ventilation for them daughter at home Mr. Judge Hayden admitted that the child “has fewer convulsions in home”, but said that “she is not amenable to treatment that can make her better.”
parents agree that she will not recover, but disagree that the “ceiling of care” should be imposed.
The court heard how baby girl was born in Lebanon after her parents fled from Syria.
She began to get sick about four years ago, after arriving in England.
familylegal team tell parents pretty much handled their child’s needs at home, especially during the pandemic when they did with very little formal care and only support of children’s community care services.
During the court session, the girl father, who fled the war in Syria, said he saw his brother killed in Syria, watched it father dieand that on the way to the UK family saw friends pass away.
“I know what kind dying looks like”, he told the court.[My daughter] is not dying.”
Shortly after testifying last a week, father grabbed his chest and fell in court.
He was taken to the hospital but looked fine in subsequent hearings.
